Minnesota § 144.338 - DATA SHARING FOR PATIENT REGISTRIES LIMITED

§ 144.338. DATA SHARING FOR PATIENT REGISTRIES LIMITED

Subdivision 1.Definitions.

(a) For purposes of this section, the following terms have the meanings given.

(b) "Disability" means any condition or characteristic that renders a person a disabled person. A disabled person is any person who:

(1) has a physical, sensory, or mental impairment which materially limits one or more major life activities;

(2) has a record of such an impairment;

(3) is regarded as having such an impairment; or

(4) has an impairment that is episodic or in remission and would materially limit a major life activity when active.

(c) "Patient registry" means a list, directory, or database of the names, contact information, or other identifying information of individuals who have, had, or are at risk of having a specific disability.

Subd. 2.Dissemination prohibited.

(a) Except as specifically authorized or required by state or federal law, a person must not add, share, or disseminate the following data to a patient registry without the individual's informed consent to have the individual's data included on the patient registry:

(1) an individual's name or other data that could reasonably be used to identify an individual; or

(2) an individual's contact information, including but not limited to a home address, telephone number, or email addresses.

(b) Nothing in this section prohibits an individual from transmitting the individual's own identifying data to a patient registry.

Subd. 3.Enforcement.

The attorney general may enforce this section pursuant to section 8.31, except that the remedies provided by section 8.31, subdivision 3a, do not apply to a violation of this section. A government entity, as defined by section 13.02, subdivision 7a, that violates this section is subject to the remedies and penalties under sections 13.08, 13.085, and 13.09.

History:

2025 c 35 art 9 s 7

Official Publication of the State of Minnesota
Revisor of Statutes